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Tracy-Street
#21 Posted : Wednesday, August 03, 2011 10:46:37 PM Quote
Rank: Advanced Member


Groups: Registered

Joined: 5/12/2011
Posts: 124
Location: Wilts, nr Stonehenge
Hi Julia,

Thank you for your message. You know what it's like, we just get on with it, if we think too hard about how difficult life can be, we/I would cry and never stop. And then all you get from that is a headache and puffy eyes lol.

The FAB effect of Cimzia has got to be the effect it has on Fatigue, OMG!! It's amazing how the fatigue is no longer a problem. I feel knackered now from a day at work rather than yawning as I'm brushing my teeth in the morning.

I'm afraid our Rhuemy nurse is very hard to get hold of. There were some huge changes made apparently as I was diagnosed, hence why I slipped thru the net for treatment. She only works term times, which is a bugger, but my GP who I saw yesterday is trying to get hold of my specialist.

I always seem to be chasing treatments etc. Sorry, that turned into a right moan, didn't mean it to.

Feeling better today, hope it lasts to at least be able to enjoy 'some' of the summer hols.

Trace xxThumpUp
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Sara-R
#22 Posted : Thursday, August 04, 2011 5:05:59 PM Quote
Rank: Advanced Member


Groups: Registered

Joined: 11/20/2010
Posts: 244
Location: Cornwall
Hi Claire,

A belated welcome from me too. I'm Sara, 45, diagnosed last November and the MTX etc is supposed to be working so I just carry on being super woman and then crash and burn. Life is far too interesting and exciting to slow down and do this pacing stuff, as my long suffering husband remarks when he mentions having a rest the reactions are sometimes a bit fruity! But learn I must, I still have this idea that I can cheat the blasted thing somehow. I live in a strange version of reality!

This place is the bees knees for advice, moans and groans and understanding so keep posting, looking forward to getting to know you.

Sara
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Julia17
#23 Posted : Thursday, August 04, 2011 7:16:25 PM Quote
Rank: Advanced Member


Groups: Registered

Joined: 2/18/2010
Posts: 1,098
Location: farningham kent
Hi Trace

Great to hear you have had a good day, so hope it stays that way for you ThumpUp

Trace - you know you are not allowed to say sorry on here, and you wasn t moaning anyway BigGrin It must be so hard as you say chasing treatments, hope you get there very soon.

Its funny you have said about the fatigue, I started on Cimzia last Friday and have has quite an abundance of energy ( relatively speaking ) I thought it was due to a blast of steroid in the posterior just over a week ago but not so sure now.

Look forward to hearing how things are going for you.

Julia xx
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LynW
#24 Posted : Friday, August 05, 2011 3:22:45 AM Quote
Rank: Advanced Member

Groups: Registered

Joined: 12/4/2009
Posts: 2,127
Location: Thornton Cleveleys
Hi Claire

A belated welcome to the forum. A great place to be for support and information; lots of folk, lots of knowledge and a wealth of tried and tested experiences! Glad you have joined us!

I'm Lyn, married to Mike, we have four 'growing-up' children and live in Thornton Cleveleys in north west Lancashire. I was diagnosed with RA 23 years ago and have since run the gamut of medication (although more options are popping up now and again thankfully!) and had lots of surgical procedures along the way. Currently on Enbrel, Methotrexate, Prednisolone and Naproxen, and a wagon load of pain killers! Been largely out of control for the last 12 months, but heyho things can only get better ... hopefully!

Glad to hear things are fairly well controlled for you; fingers crossed it stays that way! Keep posting, look forward to getting to know you.

Lyn x
My son, Ian, completed the BUPA Great North Run on 15th September running for the National Rheumatoid Arthritis Society (NRAS). You can read his story at http://www.justgiving.com/ianlukewilson

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Joanne C
#25 Posted : Tuesday, August 23, 2011 10:49:20 PM Quote
Rank: Advanced Member


Groups: Registered

Joined: 12/3/2009
Posts: 357
Hi Claire!

Welcome to the forum, and the wonderfully supportive folks who contribute.

I'm Jo, have had RA since I was 26 and had "Arthur" with me for around 18 years now.

I see from your profile you're in Birmingham, which part? I'm in South Birmingham and under the wonderful team ay Selly oak and the Royal orthopaedic where Mr Thomas does my rebuilds.

Look forward to more posts from you

Best wishes

Jo. x
2012 Fundraising for the National Rheumatoid Arthritis Society (NRAS) http://uk.virginmoneygiving.com/RoboJo
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